Hi i was told a few years back that i had sma syndrome and i that I might need surgery but never got it but lately I been feeling really week and I m tired all the time I m scared to eat cause I get so sick so I only eat once a day so loosing alot of weight but every time I go to doctor they look at me like I m stupid when I tell them I have sma syndrome but the doctor that diagnosed me told me it was rare and alot of doctors didn t know about it what should I do i just want to talk to someone who could help me and quit giving me the run around